Disability in Isolation CV19

Disability in Isolation CV19

Well for us it’s somewhat normal, only we call it something else, we call it isolation.

Really Real Resources Covid 19 isolation Disability Stock photography CV19 Holly Neurofibromatosis, Tips for Isolation Number 9

For months at a time we haven’t been able to leave the house and we have had to avoid any type of gathering of people, when we have been able to leave. We have lived with “CV19 lockdown” on and off for 7 years. You see my little girl has a brain tumour and during chemotherapy that is what we NEED to do to keep her safe. We don’t go to parties or to the movies or out to eat or go for basic food shopping, instead we have home discos, movie nights, video chats with friends and family and I’ve had my weekly shop delivered to my door for the best part of 5 years now. Everything that everyone in most of the world is being asked to do today, we did on most days during her treatments.

Well for us it’s somewhat normal, only we call it something else, we call it isolation.

Lockdown due to CV19 or Isolation due to Neurofibromatosis?

We play games, bake, read stories, tell joke and play pranks on each other. This is the one time chemotherapy and her brain tumour has actually been useful to us, so you see we know “lockdown” and so we are coping well, lockdown for us, is just another day while on treatment only minus the sickness, however that deep feeling of fear is still there. It’s rooted in my very soul now i think and it may always be. We haven’t left the house in 31 days as of writing this, and to be honest we are happy with that because in my house i know its safe. Outside and around others its not, for the world today it is covid-19, for us too, but its also a cold, a sickness bugs, the chickenpox, viruses and every other day to day bug anyone picks up that’s causes the fear and makes us stay home on “cv19 lockdown”. I hope after this is over and the world returns to what it was before that everyone spares a thought for those like us, for who “cv19 lockdown” is just a normal day.

Really Real Resources Covid 19 isolation Stock photography CV19 Holly 2, Holly's Top Tips for Isolation: Number 10

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